If you have been diagnosed with carcinoid syndrome, it's important to build an open communication with your healthcare providers. One of the best ways to do this is to ask questions.

It's normal to have difficulty remembering all of the questions you wanted to ask during your visit. That's why it's a good idea to keep a list of questions as well as anything you may have noticed about your symptoms, and bring it with you on each visit. You may also want to bring someone with you to your visit to help you remember your questions and take notes on your doctor's answers. Below are some common questions that many patients have.

You can download and print these questions, and bring them with you on your next doctor visit. There is also space in the printable version for you to write your own questions.

About Carcinoid Syndrome and Treatment Options

If you have recently been diagnosed with carcinoid syndrome, you may want to ask your doctor:

What is the stage of my carcinoid tumor?
How are carcinoid tumors different from other cancers?
Do I need treatment right away?
What are my treatment options?
What are the advantages and disadvantages of each treatment option?
How can we control the symptoms of carcinoid syndrome, like diarrhea, flushing, or cramping?
How will each treatment affect my daily life?
How will you be monitoring my condition (i.e., CgA levels, 5-HIAA levels)?
How often should this be conducted?
How will we keep my gut hormone levels under control?
Should I alter my diet?

Download a printable version (PDF 70 KB) of these questions